Consumer-Generated Whole-Person Health Data: A Structured Approach

Nursing and Informatics for the 21st Century – Embracing a Digital World, 3rd Edition
Book 3:  Innovation, Technology, and Applied Informatics for Nurses

2022 Productivity Press: https://doi.org/10.4324/9781003281016

Chapter 3

Authors:  Robin Austin, Sripriya Rajamani, Karen A. Monsen

This chapter describes consumer-generated health data (CGHD) and the potential to apply informatics tools and techniques to advance the use of CGHD to understand whole-person health. Several case studies of research using CGHD with exploratory data analysis methods are described. Whole-person health is multi-faceted, including strengths, challenges and needs across environmental, psychosocial, physiological and health-related behaviors domains. Informatics makes it possible to understand whole-person health from the consumer perspective, which was lacking in big data until recently. Such data, when standardized and interoperable, can transform what is known about health in clinical encounters, communities, systems and populations by giving voice to the consumer perspective. The web-based mobile-enhanced application MyStrengths+MyHealth incorporates best practices to enable such transformation.